Below, you will find a collection of resources. While these are not the only resources available, we feel that providing a smaller collection can make the process of obtaining valuable information a bit less overwhelming. The goal is simple: Find the information you need as quickly and easily as possible in order to plan effectively, access support, and advocate for yourself and those you care for.
Education
Learn more about Alzheimer’s Disease
- NIH’s fact sheet is available in العربية, 简体中文, English, Español, and Français
- The Dementia Action Collaborative in Washington State has a Guide for Family and Care Partners
- The CDC’s overview can be found here
- Many clinicians and caregivers provide free education and information about their lived experiences via Instagram, Facebook, and TikTok. Although none of this should be interpreted as medical advice, a lot of information and support is available. Some Instagram examples: Career Caregiving Collide, Alzheimer’s Awakening, Life with Grams, Creative Connections Dementia, Teepa Snow’s PAC, Dementia Careblazers, Dementia Darling, Be Light Care, Bambu Care
Support Groups
Join a support group
- Hope Health offers caregiver support groups, grief support groups, and mindfulness meditation for caregivers
- Leeza’s Care Connection provides virtual support groups for caregivers
- While it is not a traditional support group, Reimagining Dementia is a coalition dedicated to changing the way people think about dementia
- Alz Connected is a free online community forum
- An LQBTQIA online caregiver community is offered through caregiver.org
Research
Learn more about opportunities to participate in research
Caregiver Respite Funds
Apply for or donate to funds that support caregivers
- What is respite care? via the Alzheimer’s Association
- Mind What Matters provides caregiver support through their caregiver relief fund
- Apply for a dementia home care grant through HFC® and Home Instead® (for residents of the US and Canada)
- The Caregiver Club has a Respite Initiative
- ARCH provides a list of respite services by state
Healthcare Decisions
Learn about navigating insurance and decision making
- The Conversation Project provides guides to support having conversations about end-of-life desires
- Dr. Brittany Lamb provides guidance regarding medical decision making with consultations for a fee on her website and free education via her Instagram account
- The National Institute on Aging provides information regarding financial and legal planning
Long Term Care
Learn about some options
- Coming soon
If you know of a resource that you feel should be included in this collection, please email us at asweetercourse@gmail.com